The Dorset CCG Learning Disability and Autism Team is responsible for delivering the all age NHS Long Term Plan Programme for people with a learning disability and / or autism in Dorset.

NHS Long Term Plan – Learning disability and autism

Easy read Long Term Plan

Learning disability annual health checks
Dynamic Support Register
Care (Education) and Treatment Reviews
LEARNING FROM LIVES AND DEATHS – LeDeR
Autism
Children and young people
Funding and support
Contact and useful links

Easy read fact sheets

NHS Long Term Plan for Learning Disability and Autism

  • Improve community based support so that people can lead lives of their choosing in homes not hospitals; further reducing our reliance on specialist hospitals, and strengthening our focus on children and young people.
  • Develop a clearer and more widespread focus on the needs of autistic people and their families, starting with autistic children with the most complex needs
  • Make sure that all NHS commissioned services are providing good quality health, care and treatment to people with a learning disability and autistic people and their families. NHS staff will be supported to make the changes needed (reasonable adjustments) to make sure people with a learning disability and autistic people get equal access to, experience of and outcomes from care and treatment
  • Reduce health inequalities, improving uptake of annual health checks, reducing over-medication through the Stopping The Over-Medication of children and young People with a learning disability, autism or both (STOMP) and Supporting Treatment and Appropriate Medication in Paediatrics (STAMP) programmes and taking action to prevent avoidable deaths through learning from deaths reviews (LeDeR)
  • Continue to champion the insight and strengths of people with lived experience and their families in all of our work and become a model employer of people with a learning disability and of autistic people
  • Make sure that the whole NHS has an awareness of the needs of people with a learning disability and autistic people, working together to improve the way it cares, supports, listens to, works with and improves the health and wellbeing of them and their families.

Learning disability annual health checks

The Learning Disability Annual Health Check aims to improve the health and wellbeing of people with learning disabilities, as they often have difficulty in recognising illness, communicating their needs and using health services.

If you have a learning disability you can get extra support when visiting your doctor. They can make reasonable adjustments. NHS England » Reasonable adjustments. All you have to do is add your name to the Learning Disability Register at your GP Surgery.  

If you are over 14 years old, have a learning disability and are on the learning disability register you should have an annual health check.

Learning disabilities overview – NHS

Learning disabilities – annual health checks

Getting a health check with your doctor will help to keep you healthy.

All parts of the Annual Health Check are voluntary. You need to give your consent before anything happens.

At the end of the health check the doctor or nurse will give you a Health Action Plan to help you stay well. Keep the Health Action Plan in a safe place and bring the Health Action Plan with you to your next health check.

Further information about the annual health check

Mencap – Don’t Miss Out

Dynamic Support Register

Dorset has a Dynamic Support Register for children, young people and adults with a learning disability and / or autism to help you get the right support as fast as possible when it is needed.

The register is about checking that your care, treatment (and education if applicable) is right. If it isn’t meeting your needs, this process can look at what changes can be made to help and to prevent crisis. It helps services work together with you, your family and your network to look at what extra help and support you might need and can plan their support around this for you locally and at home.

Most people with mental health difficulties or challenging behaviour can live well at home, in their community and may never need to go into a specialist hospital for assessment or treatment.

Avoiding crisis – a survival guide

Care (Education) and Treatment Reviews

There are two versions of the Care and Treatment Review. One is for adults and is known as the Care and Treatment Review (CTR) and the other is for children and young people and is called a Care, Education and Treatment Review (CETR).

A CTR/CETR is a meeting to check that a person’s care and treatment is meeting their needs.

A CTR/CETR may be held for anyone with learning disabilities, autism or both who may be at risk of being admitted to hospital or who is already in a specialist learning disability or mental health hospital.

These are in place to make sure that people get the right care at the right time and are not admitted to hospital unnecessarily.

For Care (Education) and Treatment Reviews, please email: ctr@dorsetccg.nhs.uk

Learning from Lives and Deaths – People with a Learning Disability and Autistic People (LeDeR)

What is LeDeR?

The Learning from Lives and Deaths – People with a Learning Disability and Autistic People, or LeDeR, is a service improvement programme for people living with a learning disability. Created in 2017, it was formally known as the Learning from Deaths Review Programme and is funded by NHS England and Improvement. The programme – a first of its kind – was created to improve care, reduce health inequalities, and prevent premature mortality of people with a learning disability, but as of autumn 2021, it will include improving services for autistic people too.

LeDeR reviews are about looking at the life of a person with a learning disability who died and finding out about the health and social care services which that person received throughout their life. It is not a mortality review as some people might think. Its purpose is not to find out why that person died nor is it an investigation into their death.

We look at the person’s life and the care they received to support our important goal and commitment to improve services where possible. We do this by searching for potential areas which require improvement, areas we can learn from, and examples of good practise which can be replicated across the country to help reduce inequalities in care for people living with a learning disability, and essentially, reduce the incidence of them dying prematurely or dying earlier than they should.

Information about the new Learning Disability Life and Death Review (LeDeR) programme policy

NHS England LeDeR policy 2021

A key part of the LeDeR programme is to support local areas to review the deaths of people with learning disabilities (deaths include from age 4 and above), helping to promote and implement the new review process, and providing support to local areas to take forward the lessons learned in the reviews in order to make improvements to service provision.

The LeDeR programme also collate and share anonymised information about the deaths of people with learning disabilities so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.

For information about LeDeR in Dorset LeDeR-Team@dorsetccg.nhs.uk

Anyone can notify the LeDeR Programme of a death, including people with learning disabilities themselves, family members, friends and paid staff.

Children and young people

Funding and support

Autism

All Age Autism Review

How to contact us

Useful links