What is LeDeR?
The Learning from Lives and Deaths – People with a Learning Disability and Autistic People, or LeDeR, is a service improvement programme for people living with a learning disability. Created in 2017, it was formally known as the Learning from Deaths Review Programme and is funded by NHS England and Improvement. The programme – a first of its kind – was created to improve care, reduce health inequalities, and prevent premature mortality of people with a learning disability, but as of autumn 2021, it will include improving services for autistic people too.
LeDeR reviews are about looking at the life of a person with a learning disability who died and finding out about the health and social care services which that person received throughout their life. It is not a mortality review as some people might think. Its purpose is not to find out why that person died nor is it an investigation into their death.
We look at the person’s life and the care they received to support our important goal and commitment to improve services where possible. We do this by searching for potential areas which require improvement, areas we can learn from, and examples of good practise which can be replicated across the country to help reduce inequalities in care for people living with a learning disability, and essentially, reduce the incidence of them dying prematurely or dying earlier than they should.
Information about the new Learning Disability Life and Death Review (LeDeR) programme policy
NHS England LeDeR policy 2021